Amy M. Pienta photo

Center for Large Data Research and Data Sharing in Rehabilitation

a MiCDA Research Project Description

Investigators: Amy M. Pienta, Jared Alan Lyle, Denise G. Tate, Susan Lynn Murphy

Funding (subcontract): Eunice Kennedy Shriver National Institute of Child Health and Human Development, 2015-2018 (2 P2C HD 065702 06)

ICPSR is uniquely resourced to build a thematic data archive for the University of Texas Medical Branch that has the capacity to support research about disabilities and rehabilitation. ICPSR has built thematic archives for a number of government agencies and private foundations and maintains numerous thematic data archives currently. ICPSR has an established infrastructure that allows for a thematic archive to be built mainly with investing in web design and adding data into the archive as is described in the application. The underlying infrastructure, operations, and processes of ICPSR allow a thematic data archive to be built with only a modest additional investment. ICPSR will build a website for the disability and rehabilitation data archive at ICPSR. ICPSR will acquire and process new datasets for the archive annually and work to build a culture of data sharing among disability and rehabilitation researchers. ICPSR will also contribute to the training (data management and curation) and outreach for the center at UTMB. Physical Medicine and Rehabilitation will Disseminate and raise awareness in the rehabilitation research community regarding the ICPSR archiving process and data sharing activities through presentations at meetings and conferences.

Research Signature Themes:

Survey Measurement and Methods: Archiving
Health and well-being in later life: Disability