Caregiving for Alzheimer's Disease and Related Dementias: Enhancing the National Study of Caregiving (NSOC)
Investigators: Vicki Freedman
Funding (subcontract): National Institute on Aging, 2016-2021 (1 R01 AG 054004 01)
The goal of this project is to build upon the National Health and Aging Trends Study and the National Study of Caregiving to provide new national data that will enhance understanding of caregiving for older adults with Alzheimer's disease and related dementias (ADRD). Aims are to: 1. Re-interview caregivers that participated in the 2015 NSOC and new caregivers of older adults in the 2017 NHATS. In addition to core NSOC content, administer a new module on caregiver involvement in health systems and two time diary interviews to capture activities and experienced wellbeing on the previous day. 2. Disseminate the data widely by creating a set of easy-to-use linked longitudinal files; holding user workshops at scientific meetings; and hosting an early results workshop focused on ADRD caregiving; and, 3. Conduct analyses to: 1) identify salient ADRD care and caregiving trajectories, 2) provide the first national profile of ADRD caregivers? health system interactions; and 3) investigate the time use and wellbeing of ADRD caregivers. For each topic, we will provide contrasts with caregivers to older adults without ADRD.